January 28, 2013

our week

Last week was a tough week, to say the least.  I posted last week about how much we needed Olivia to gain some weight by Tuesday (tomorrow) but unfortunately that hasn't seemed to have happened like we hoped.  We don't know what was going on with Olivia but from last Wednesday night until Friday morning, Olivia basically threw up after each bottle.  It was probably the most frustrating and sad 36 hours we've had around here in awhile.  We have weighed her at home several times over the last few days and we know she lost about an ounce-ounce and a half and I honestly felt defeated.  She is back up to her original weight (9lbs 14oz) that she was at 2 weeks ago but we were fervently praying she would break the 10 pound mark by this weigh-in at the doctor scheduled for Tuesday (tomorrow).  We tried every combination of formula and rice cereal we could think of but the girl just couldn't keep anything down.  We have no idea if it was some random stomach thing or severe reflux but whatever it was, we couldn't figure out how to help Olivia. It broke my heart because I knew she was miserable and I couldn't fix it.

Olivia is not a fan of the scale but it is a regular part of our day right now so she'll learn to get used to it, I'm sure. ;)

Olivia also had lots of baths!  Thankfully she didn't mind it and it was actually a calming place for her.

I'm not sure what happened, since we didn't change anything and went back to a normal bottle, but finally over the weekend, the throwing up stopped.  Praise the Lord!  We have now gone more than 24 hours without any throwing up!

Jason introduced Olivia to laughing babies on YouTube.  We aren't sure what she thought of it but she stared at it for a few minutes and we are pretty sure she chuckled at one of the videos.  It was the funniest noise I've ever heard!  We can't wait for her to giggle more!

Unfortunately, Olivia's doctor is sick this week so our appointment for weight check will be next Monday.  But, as Jason said, God is giving us some extra time to get some weight on our girl so we don't have to start taking more drastic measures.  I'm so very thankful for such a sweet husband who always puts things in perspective for me when I am on the verge of tears.  God knew exactly who I needed to walk alongside me during this time of life.

On top of Olivia's struggles last week, sweet Hannah came down with a horrible cough.  The minute I heard her coughing, my wonderful Mom came and took her so we could protect Olivia as much as possible.  Hannah spent 4 days at my parents' house while we tended to Olivia.  Again, so very thankful to live close to my parents who help us out tremendously and sacrificially.  We honestly wouldn't make it through most of this junk without them here.

I was so glad to have Hannah back home!  We spent a lot of time cuddling this weekend after 4 days apart!

We are praying for an uneventful week with Hannah back at school and therapy appointments for Olivia.  I'll update later with several praises about our sweet Olivia and some fun things Hannah has been up to!

January 18, 2013

BIG prayers needed

I am SO behind blogging and want to catch up on all our fun Christmas things but wanted to share what Olivia has had going on this week and ask for prayers for our sweet baby.

On Tuesday, we had an appointment with the neurologist.  And though things seem to be going well, we have reason to believe that Olivia is having some seizure activity pretty regularly.  It isn't like the seizures that we all see on TV or in movies so we aren't completely sure what is going on but some of her movements are a bit odd and the doctor believes these movements could be seizures.  We are increasing her seizure medicine and praying this will fix the "ticks" that we see happening.  If not, we will be going back in for an EEG soon.  We REALLY don't want to have to do that again right now so please pray that the increase in medicine will reduce (or eliminate!) these odd movements.

We also met with the nutritionist on Tuesday because Olivia isn't gaining weight as she should.  She is now in the 1% for weight.  She's also in the 1% for height and head circumference, so she's proportional just not growing at the rate the doctors had hoped.  It is SO important for Olivia to be gaining weight because her brain needs as many nutrients as possible but if she isn't gaining weight there aren't a lot of "extra" nutrients to go around to make the healthy parts of her brain develop as necessary.

On Thursday, we had Olivia's official 4-month check up.  After we met with the nutritionist on Tuesday, we were instructed to change up her formula intake a little bit to try and get more calories per ounce in her bottles.  Unfortunately, Olivia did not tolerate the higher calories and threw up after most of her bottles on Wednesday.  So, she didn't gain any weight at the doctor on Thursday.  She didn't lose any but the nutrtionist really wanted her to gain at least an ounce in that 48 hour time period.  Now we are simply trying to get her to finish each bottle (4 ounces) and keep it all down for the next few days.  I will talk with the nutritionist again next week and take Olivia back to the pediatrician in 2 weeks for a we ight check.  The doctors are running out of options to increase Olivia's calorie intake so we are praying that big things will happen in the next few days and weeks. Will you please join us in praying Olivia will gain weight?  We are desperate for our sweet girl to grow!
Sweet sister snuggle time after a hard week.  LOVE these girls SO much and am SO blessed to be their mommy!