Fortunately, we were able to do the EEG locally and we got to have the same tech as last time so it was a familiar thing for all of us. Most of Olivia's seizures occur when she is waking up so the tech wanted her good and asleep so we could wake her up and watch what happens. This girl was snoozin!
And was not too happy with us when we woke her up....
She had one of her seizures during the EEG so the tech got a really good picture of what happens, both in her brain and physically.
We were told they would send the EEG to be read in Little Rock and then we would hear back from our neurologist locally by Thursday. Well, I got a call Wednesday late afternoon from the nurse that the neurologist needed to see us Thursday morning because Olivia's EEG was definitely showing signs of seizures. Even though the EEG confirmed what we had been seeing at home for a few weeks, hearing that we needed to see the doctor as soon as possible sent Jason and I into a bit of a tizzy Wednesday night. Fortunately, we had small group that night to distract us a little and also to be prayed for by our amazing friends.
So Thursday we went to see the neurologist and Olivia wasn't too excited about being back at the doctor. Ha!
We kinda went in with our minds set on the worst case scenario so what we were told wasn't too horrible. Olivia is having infantile spasms, which is basically a form of epilepsy. Of course we have known since Olivia's birth that she would be at risk for seizures but we were just praying that with medication, seizures would never happen. However, our neurologist told us that the type of seizures Olivia is having is very common for babies who go without oxygen for a period of time during birth. And it is definitely common for these types of seizures to manifest 4-10 months after birth so with Olivia being 6 months old, the neurologist said she wasn't surprised this was happening. We have started a new type of seizure medication that will hopefully "cure" these infantile spasms and we prayerfully will never see them again. The risk of the new medication is peripheral blindness so we are praying hard that that doesn't happen to Olivia. And after only three days of this medication, we are already seeing a reduction in Olivia's seizure activity so we have full confidence that this medicine will take care of these seizures and hopefully Olivia won't be on these medication for more than a few months, which will also reduce her risk of peripheral blindness.
Even in the midst of all the unknowns about Olivia's future, we know that God is good and His plan is so much greater than ours...and that is the truth that we have to cling to to make it through each doctor appointment with Olivia because it is so difficult as parents to know there is nothing we can do to "fix" Olivia....it is simply our job to love her and trust God with her life.