December 15, 2012

when we haven't been at the doctor....

Even though most of my time as been spent in a doctor's office the past few weeks, I am glad to say that we have still made time to do some fun things to celebrate the holidays and make great family memories!

Before Thanksgiving, we went to the Lights of the Ozarks parade with some sweet friends.  Lights of the Ozarks is seriously my favorite thing about Fayetteville at Christmas.  And it was the perfect way to kick off the holidays!

These two loved the lights, dancing to music and bundling up together.

These girls did a little window shopping at some of our favorite downtown shops.

Checking out the Christmas trees on the square.
 
We also had a neighborhood Fall Festival.  It was so fun hanging out with neighbors that we love and meeting new neighbors.  I am so thankful for where we live!
 
 

One Sunday afternoon, Rebekah and I took Cilla and Hannah to see Beauty and the Beast.  Hannah loved it....especially getting to dress up like Belle!  I love doing fun, girly things with her and her friends!


 
Hannah went camping with my parents.  She had a blast!  And how old does she look in these leggings, shirt and UGGS??  What happened to my baby??
 
Jason and I got to go to a Friendsgiving/Holiday Dinner with some sweet friends that we don't see very often.  It was nice to have some adult time during the craziness of the holidays!
 
We've had lots of fun and are enjoying the holidays to the fullest this year!  We've had lots more fun things going on getting ready for Christmas and I can't wait to blog about it all! (One day I'll actually be caught up.... :))


December 13, 2012

10 days of sickness

Olivia had her first "sick baby" doctor appointment last week and it broke my heart!  She had been super congested and not eating for about 24 hours so we were pretty worried and went straight to the doctor.  Fortunately, the doctor didn't hear or see anything of concern so we just continued to do what we could to get her to eat and sleep.  I've spent many nights on the couch with our sick little girl trying to keep her comfortable and asleep for more than 30 minutes at time.  It was a rough week for all of us with very little sleep and lots of stress over Olivia's eating.

LOTS of sweet snuggles with this sick baby

Over the weekend, things seemed to improve.  Olivia was eating better and we were getting back on our "schedule".  However, Monday things seemed to get a little worse again.  This time her congestion had turned into a pretty nasty-sounding cough.  So back to the doctor we went.  The doctor ordered a chest xray because even though she still didn't hear anything in Olivia's lungs, she wanted to make sure she wasn't missing something.  Unfortunately, Jason didn't go with me to this appointment so I was by myself doing this whole xray thing.  Not the greatest experience ever but Olivia and I both survived. :)  The xray came back completely clear (Praise the Lord!) so now we are just back to focusing on her eating and staying hydrated.  Even though Olivia hasn't eaten well the past 10 days, she hasn't lost weight so that is an answered prayer for sure!  She hasn't gained but we'll take the not losing at this point!

Cuddles with Daddy after the horrible xray experience made everything better!

Today she woke up less congested, eating better and less fussy. YAY!  Hoping that continues through the week (and through Christmas) because we've got some super fun things planned this year!

December 6, 2012

olivia's appointments and EEG results

Last week was a busy and long week for sweet Olivia.  We had a doctor appointment every day and ended the week with an EEG.  Even though it was a long week for all of us, we got more information on Olivia's development, growth and brain activity.

We started the week with another check up with the NICU doctor.  Olivia is gaining weight but unfortunately she did fall to the 10th percentile (9 lbs 4oz) from the 25th a month ago.  I was incredibly discouraged at first but we have the ability to up her calories in each bottle so we are trying that and hoping for better weight gain this month.

The NICU doctor was impressed with her development so far.  We continue to be encouraged with what Olivia is doing physically and know that therapy is helping tremendously!
 
We also went to meet with the Developmental Pediatrician.  Basically this pediatrician will track with Olivia's growth and development for the next 25 years.  We were asked lots of questions, especially about Olivia's eating since that is the main concern of all the doctors we see.  The doctor gave us some great advice and new things to try.  We will see the developmental pediatrician every 3 months (or more often) as needed to help keep Olivia on track to meet developmental milestones for the next 2 years.

Friday was the big day that we have been anticipating since leaving the hospital two months ago.  This was Olivia's first EEG after discharge and we were all a little bit anxious about it.  Thankfully Jason went with us and I was SO thankful after the cry fest that happened while the tech was putting the probes on Olivia's head.  Olivia hates being restrained so this was pretty much torture for her.  Jason is so good with her in these type of situations and remains super calm.  I was on the verge of tears the entire time.
 
There were 24 probes glued all over Olivia's head.  Even though this looks pretty terrible, it doesn't hurt her at all.
 
The tech had to monitor her brain activity for an hour.  Thankfully she slept most of the time and really did look super peaceful.
 
Towards the end of the scan, she woke up and the tech did a strobe light test.  Olivia HATED it!  But thankfully that didn't seem to induce any seizure-like activity that we could see.

During the test, the tech couldn't say really anything about what he was seeing.  He did say that he would go get the neurologist if there seemed to be any severe/crazy activity and he didn't have to do that so we were pretty encouraged.  However, we spoke with the neurologist's nurse this week after the results came back from Little Rock and there is still abnormal brain activity.  It has improved since her last scan so that is encouraging but I'll be honest that I am a little bummed by the results.  We were hoping to be able to stop the seizure medicine but that won't happen as long as there is abnormal brain activity.  We go back to the neurologist in January and hopefully will get more information about what is next for Olivia and her brain.

We know that God is in control and He is the Ultimate Healer.  We are trusting in His timing for complete healing of Olivia's brain.  And if He chooses to heal just a little at a time, we wil choose to rejoice in that and praise Him for each little touch of healing we see.

We've had another long week around here but I'll save that for another post. :)