September 19, 2012

NICU....4 weeks

It is so hard to believe that we started this journey four weeks ago. It's funny too how it seems time has flown by but there are some days in the past month that I felt lasted forever. We have seen our little munchkin go from this at Day 1:


to this at Day 28:


She has come SO far in four weeks but it hasn't always been a smooth ride.  This is definitely a roller coaster ride and we are hoping we are nearing the end.  We did get word earlier this week that we are probably going to be in the NICU for another 2-3 weeks, or until she gets her feeding from a bottle down.  We are SO ready for Olivia to be home with us and complete our family!

10 comments:

  1. The last weeks are so hard, as the routine of NICU life hits hard and the anxiety settles in. I remember feeling so frustrated by bottle feeds, which were not my daughter's strong suit at all. You will get there though, and I promise that your NICU days will eventually feel like a surreal, hazy memory.

    Olivia's eyes demonstrate to me that there is a lot going on behind them. They are thoughtful and intense and intelligent eyes. She is a special girl who is going to show the world some amazing stuff.

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    1. Thank you for your sweet words of encouragement! It's always nice to hear from other moms who have been where we are. Thank you for following our journey!

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  2. She looks so bright-eyed and content. She knows how loved and adored she is, and soon she'll get to tell you how much she loves you too!

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  3. Stacey, I came over from Kelly's blog. I am praying for your sweet daughter and your family!

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  4. Found your blog through Kellys Korner. Your faithfulness to the Lord is an inspiration. Praying for your family and for big miracles for your beautiful little Olivia.

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  5. I found your blog through Kelly's Korner. I went back and read all of your posts up until this point and I can't help but get emotional b/c this exact same thing happened to my daughter. She was born in March 2010, and she was in the NICU for a month b/c she lost oxygen, began having seizures and had swelling on her brain. I wanted to comment not to just tell you about my daughter, but to encourage you. She is now 2 1/2 and a perfectly healthy child. She does have a speech delay, but she currently works with a speech therapist and will soon be working with an occupational therapist. The neurologist originally told us she would be blind and have a significant delay in speech and other areas.

    God is our ultimate healer and He does hear our prayers! He has everything all planned out and all we have to do is trust Him. I'm praying for y'all and I know we have never met, but I have been where you are right now, so if you ever have any questions or just want someone to talk to i'm here. My e-mail address should be linked.

    Mary Beth

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  6. I'm sorry for the challenges you are facing with your sweet daughter Olivia. I'd like to offer you some hope from someone who has been almost exactly where you are right now; and have come out on the other side 10 years later. My son was born in October 2002. Although I did not have a placental abruption, he sustained a brain injury from loss of oxygen due to a cord accident. He was in the NICU for a little more than three weeks, battling seizures from the brain injury. We were told, as I'm sure you have been, that the extent of the injury and the impact it would have on his future life could not be known until milestones were or were not met. I was devastated but in love. I know that GOD held him in His hand during that time. There is, of course, lots more I could share about his journey. But today, he is a happy, healthy (almost) 10 year old with a rare seizure disorder. He is a little behind the rest of his 4th grade class; but is the most amazing child I've ever met. If you had a normal, day-to-day conversation with him, you would never know anything was wrong. We have battled over 10 different types of seizures and 6/7 medication changes over the years. After 5 years of little seizure control, we have finally found a combination of drugs that work AMAZING for him. His pediatrician and neurologist have been wonderful throughout the process. Things can get discouraging. He's had to go through more than most adults I know. HOWEVER, 10 years on the other side of the original nightmare has granted me perspective and thankfulness for what IS versus what COULD HAVE BEEN.

    My prayers are with you. You will get through this. And no matter what goes on in Olivia's brain, I will never forget what a doctor told me about all the "medical unknowns" -"Don't look at the films, look at the child". You'll be AMAZED at what you'll find!! Blessings to your family!!

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    1. Julie, thank you for sharing your story. It is so encouraging to hear from people who have been where we are and then hear where they are today on the other side. Thank you for praying for us & Olivia. This road is long but we are thankful we aren't alone. Blessings to you!

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  7. Praying for Olivia, you and your family! Our 4th child spent almost 4 weeks in the NICU. I think our greatest challenge was letting go of the control we thought we had in our children's lives. To be placed in a position where only the doctors/nurses could care for him, and all we could do was love on him and pray for him - truly humbling! Praying that you all feel God's peace that passes all understanding and for a complete and miraculous healing for your dear Olivia.

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  8. Just want you to know that I'm praying for sweet Olivia, you and your family.

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