Today was a decently quiet day for Olivia. The big thing for today, however, was that she finally had her nasal canula removed, which means she is completely breathing on her own! It was such a great surprise to see her without it today! And she is becoming more alert because the neurologist who reviewed her EEG has recommended that she be weaned off the strongest anti-seizure medicine, phenobarbital, that she has been on since birth. It was fun to see her eyes a few times today.
She wasn't too sure about everything going on and wouldn't keep her eyes open for very long but it was still refreshing to see her more alert and awake.
I've been getting some good cuddle time in with her each day during her feedings. It is by far my favorite time of day!
The occupational therapist began therapy today with Olivia and we actually got to see some of things she will do each time. It's basically just infant massage, working on Olivia's joints and "waking up" her nervous system. I will be taking a few infant massage classes at the hospital before we bring her home so we can continue this therapy at home.
We still haven't met with the neurologist or the doctor this week to discuss any of the tests that have been happening. I kind of feel like we are walking in the dark until the MRI on Friday so until then, I am soaking up all my time with this precious baby girl and trusting the Lord for complete healing.